en تخصصي Special مقالات اصيل Original Article <span style="font-size:11pt"><span style="line-height:150%"><span calibri="" style="font-family:"><b><span style="font-size:12.0pt"><span style="line-height:150%"><span new="" roman="" style="font-family:" times="">Background</span></span></span></b><span style="font-size:12.0pt"><span style="line-height:150%"><span new="" roman="" style="font-family:" times="">: Policy makers, researchers and health care professionals are faced daily with the challenge of how to prioritize their activities and actions in different areas of their responsibilities. In the field of health, their decisions are often influenced by the reality of population needs on the one hand and limited resources on the other. The correctness of decisions is completely dependent on the quality and accuracy of information from the target population. Patient registries, have for decades been an important source of data needed to evaluate clinical practice, evaluate health service delivery, and assess policy implications at the local, regional, national, and international levels. </span></span></span></span></span></span><br> <span style="font-size:11pt"><span style="line-height:150%"><span calibri="" style="font-family:"><span style="font-size:12.0pt"><span style="line-height:150%"><span style="font-family:"Times New Roman",serif"></span></span></span></span></span></span><br> <span style="font-size:11pt"><span style="line-height:150%"><span calibri="" style="font-family:"><b><span style="font-size:12.0pt"><span style="line-height:150%"><span new="" roman="" style="font-family:" times="">Method</span></span></span></b><span style="font-size:12.0pt"><span style="line-height:150%"><span new="" roman="" style="font-family:" times="">: Based on the research objectives, fourteen registration forms consisting of 790 variables were designed. The data of cleft lip and palate patients who underwent surgery in Hazrat Fatemeh Hospital during the year 2022, in Tehran, Iran, were collected and entered into the registration system, and then the amount of recorded data was assessed based on the research objectives.</span></span></span></span></span></span><br> <span style="font-size:11pt"><span style="line-height:150%"><span calibri="" style="font-family:"><span style="font-size:12.0pt"><span style="line-height:150%"><span style="font-family:"Times New Roman",serif"></span></span></span></span></span></span><br> <span style="font-size:11pt"><span style="line-height:150%"><span calibri="" style="font-family:"><b><span style="font-size:12.0pt"><span style="line-height:150%"><span new="" roman="" style="font-family:" times="">Results</span></span></span></b><span style="font-size:12.0pt"><span style="line-height:150%"><span new="" roman="" style="font-family:" times="">: Only 28% of the data of cleft lip and palate patients were recorded in the clinical files during their hospital stay, and 72% of the required data are not recorded. However, the accuracy of the recorded data and their validity has not been evaluated.</span></span></span><span dir="RTL" lang="AR-SA" style="font-size:12.0pt"><span style="line-height:150%"><span style="font-family:"Times New Roman",serif"></span></span></span></span></span></span><br> <span style="font-size:11pt"><span style="line-height:150%"><span calibri="" style="font-family:"><span style="font-size:12.0pt"><span style="line-height:150%"><span style="font-family:"Times New Roman",serif"></span></span></span></span></span></span><br> <span style="font-size:11pt"><span style="line-height:150%"><span calibri="" style="font-family:"><b><span style="font-size:12.0pt"><span style="line-height:150%"><span new="" roman="" style="font-family:" times="">Conclusion</span></span></span></b><span style="font-size:12.0pt"><span style="line-height:150%"><span new="" roman="" style="font-family:" times="">: In order to obtain the necessary data for the designed objectives, the data recorded in the hospital are not sufficient and accurate, and a registry is needed to record accurately the data of cleft lip and palate patients.</span></span></span><span style="font-size:12.0pt"><span style="line-height:150%"><span style="font-family:"Times New Roman",serif"></span></span></span></span></span></span><br> &nbsp; Registry, Cleft lip, Cleft palate 28 32 http://wjps.ir/browse.php?a_code=A-10-966-3&slc_lang=en&sid=1 Reza Vaghardoost 100319475328460016480 100319475328460016480 No 1. Department of Plastic and Reconstructive Surgery, School of medicine, Iran university of medical sciences, Tehran, Iran Noor ahmad Latifi 100319475328460016481 100319475328460016481 No 1. Department of Plastic and Reconstructive Surgery, School of medicine, Iran university of medical sciences, Tehran, Iran Abolfazl Abbaszadeh 100319475328460016482 100319475328460016482 No 1. Department of Plastic and Reconstructive Surgery, School of medicine, Iran university of medical sciences, Tehran, Iran Shahram Roustaei Dr.shahram.roustaei@gmail.com 100319475328460016483 100319475328460016483 Yes 1. Department of Plastic and Reconstructive Surgery, School of medicine, Iran university of medical sciences, Tehran, Iran Mahdiye Tavakoli 100319475328460016484 100319475328460016484 No PhD in Speech therapy, Hazrat Fatemeh Hospital, Iran University of Medical Sciences, Tehran, Iran